Effects of Using Non-Pharmaceutical Care Tools on Developing a Sense of Dignity in Ill Individuals Nearing the End of Their Lives
Keywords:
Hospice, Non-pharmacological care, DignityAbstract
Objective
This paper examines the link between non-pharmacological care tools carried out by volunteers in a hospice and the development of the perception of dignity in people with end-of-life terminal illnesses.
Materials and Methods
We interviewed volunteers from a hospice institution in Argentina, who carried out non-pharmacological care activities aimed at people at the end-of-life. The results of these interviews were analyzed with the Atlas Ti software, using the grounded theory as a form of qualitative codification.
Results
From the codification of the interviews, we obtained the following analysis categories: 1. Caring after the caregivers (mentioned 14 times), 2. Caretaking into account the temporal needs of others (mentioned 7 times), 3. Active listening (mentioned 11 times), 4. Environmental aesthetic factors (mentioned 18 times) and 5. Enhancement of autonomy and selfhood (mentioned 22 times).
Discussion
We examined ways in which volunteers associated with the care of people with end-of-life terminal illnesses understand their work from the explanation of the non-pharmacological care activities developed within the institution, as well as the link that these have with the different dimensions of the human sense.
Conclusion
The non-pharmacological care tools, as they alleviate existential/spiritual suffering, impact positively in the possibility of a terminal person’s capacity to perceive herself/himself as worthy.
References
Clark D. Palliative care history: A ritual process. European Journal of Palliative Care. 2000; 7(2): 50-55.
Clark D. From margins to centre: A review of history of pallia-tive care in cancer. Lancet Oncol. 2007; 8(5): 430-438. doi: 10.1016/ S1470-2045(07)70138-9
Luna F, Salles ALF. Develando la bioética: Sus diferentes prob-lemas y el papel de la filosofía [In: Spanish]. Perspectivas Bioéticas. 1996; 1(1): 10-22.
Movimiento Hospice Argentina (MHA). Bases y fundamentos. Documento elaborado en el marco del IV Encuentro del MHA, realizado los días 11 y 12 de octubre de 2015 en la ciudad de Mar del Plata [In: Spanish]. 2015.
Benito E, Dones M, Barbero J. El acompañamiento espiritual en cuidados paliativos [In: Portuguese]. Psicooncología. 2016; 13(2-3): 367-384. doi: 10.5209/PSIC.54442
Bento E, Barbero J, Payas A. El acompañamiento espiritual en cuidados paliativos [In: Spanish]. Una introducción y una propu-esta Web site. http://www.secpal.com/%5CDocumentos%5CBlo g%5Carchivo_9.pdf. Accessed February 24, 2020.
Richards HM, Schwartz LJ. Ethics of qualitative research: are there special issues for health services research? Fam Pract. 2002; 19(2): 135-139. doi: 10.1093/fampra/19.2.135
Glasser B, Straus A. The Discovery of Grounded Theory: Strategies for Qualitative Research. New York, USA: Aldine; 1967.
Schwarz P. Las mujeres y los cuidados de las enfermedades cróni-cas: entre la autonomía y la heteronomía [In: Spanish]. Agencia y cuidados de personas que viven con enfermedades crónicas no transmisibles. Buenos Aires. IIGG. 2012. Submit your article to this journal | https://openventio.org/submit-manuscript/ Radosta DI et al
Beauchamp T, Childress J. Principios de ética biomédica [In: Span-ish]. 4th ed. Masson S.A, USA: Barcelona; 1999.
Le Breton D. Antropología Del Cuerpo Y Modernidad [In: Spanish]. Buenos Aires, Argentina: Ediciones Nueva Visión; 2012
Kubler-Ross E. Sobre La Muerte y Los Moribundos: Alivio Del Su-frimiento Psicológico [In: Spanish]. Buenos Aires, Argentina: Debol-sillo; 2014.
Elias N. La Soledad De Los Moribundos [In: Spanish]. México, USA: Fondo de Cultura Económica; 2009.
Menezes RA. Em Busca Da Boa Morte. Antropologia Dos Cuidados Paliativos [In: Portuguese]. Rio de Janeiro, Brazil: Garamond; 2004.
Kehl KA. Moving toward peace: An analysis of the concept of a good death. Am J Hosp Palliat Med. 2006; 23. 277-286. doi: 10.1177/1049909106290380
Proulx K, Jacelon C. Dying with dignity: The good patients ver-sus the good death. Am J Hosp Palliat Med. 2004; 21. 116-120. doi: 10.1177/104990910402100209
Steinhauser KE1, Clipp EC, McNeilly M, Christakis NA, Mc-Intyre LM, Tulsky JA. In search of a good Death: Observations of patients, family, and providers. Ann Intern Med. 2000; 132(10): 825- 832. doi: 10.7326/0003-4819-132-10-200005160-00011
Collins LG, Parks SM, Winter L The state of advance care plan-ning: One decade after support. Am J Hosp Palliat Med. 2006; 23(5): 378-384. doi: 10.1177/1049909106292171
Eliott JA, Olver IN. The implications of dying cancer pa-tients’ talk on cardiopulmonary resuscitation and do-not-re-suscitate orders. Qual Health Res. 2007; 17(4): 442-445. doi: 10.1177/1049732307299198
Radosta DI. Muerte social y terminalidad terapéutica en el mar-co del moderno movimiento hospice. Mitológicas. 2016; 31: 41-53.
Gert B, Clouser D, Culver C. Paternalismo [In: Spanish]. Perspec-tivas Bioéticas. 1996; 1(2): 63-88.
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