A Study of Psychological Impact of Diagnosis of HIV in Children and Adolescents in Indian Population
DOI:
https://doi.org/10.17140/HARTOJ-1-102Keywords:
HIV disclosure, Psycho-social impact, Adolescent counsellingAbstract
Objectives: To identify psychosocial impact in children and adolescents infected with HIV with a view to improve counselling and minimize impact of HIV and improve their quality of life.
Material and Methods: This was a cross-sectional study, conducted at a tertiary care hospital among 100 consecutively enrolled HIV infected children between 10 and 18 years of age. A detailed interview on a pretested questionnaire was conducted, which include child’s personal history, knowledge of HIV, psychological concern, behavioral problems on an observation scale. Misconceptions and ignorance about the HIV/AIDS were clarified to the respondents, using this session as an educational tool also.
Result: Mean age of study population was 13.8 years with male: female ratio of 0.8:1. Only 65% respondents knew about their HIV status and only 14% had knowledge about mode of spread and prevention. 33 children complained of frequent sicknesses, 23 had feeling of anger, 19 isolation tendencies, 15 were fearful, 12 lost their confidence and 14 children were unable to concentrate on study. 29 children had a feeling of stigma towards HIV, 10 felt discriminated by classmates and community. History of sexual exploitation was given by 6 and bedwetting by 3 children. Thirteen children looked unhappy, 5 felt guilty, 3 were nervous and 1 stared blankly. Majority of respondents (91%) wanted to be a grown up and fight the disease bravely.
Conclusion: 65% respondents knew about their HIV status and 14% had knowledge about HIV. The disclosure of HIV was told to only 65% adolescents and most of them by the doctors. There was a significant psychological impact in form of anger, isolation tendencies, fearfulness, loss of confidence, and suicidal tendencies. We need to provide appropriate counseling, education and creative ways to decrease the psychological impact of HIV/AIDS with a view to improve their quality of life.
References
AIDS Epidemic Update 2011. Geneva: UNAIDS and WHO. 2011. Also available at: www.unaids.org. Accessed 2015.
NACO. Overview of the HIV epidemic in INDIA. The imple-mentation approach of NACP-III. Routes of HIV Transmission, India. 2010-2011. Also available at: www.nacoonline.org. Ac-cessed 2015.
Richter L. The Impact of HIV/AIDS on the Development of children. A generation at risk? In: Pharoah R. vulnerable chil-dren and security in Southern Africa. HIV/AIDS. 2004; 109.
Green G, Smith R. The psychosocial and health care needs of HIV-positive people in the United Kingdom: a review. HIV Medicine. 2004; 5(Suppl 1): 5-46. doi: 10.1111/j.1468-1293- .2004.00210.x
Bridget B, Julie B, Rachel C. David H. Psychological Impacts on People Living with HIV-Orphans and Other Vulnerable Chil-dren, and Their Caretakers. In: Jo S, ed. “Sorrow Makes Chil-dren of Us All: Cape Town: Centre for Social Science Research. 2003; 23-26.
Donna TB, Alan RF, Lynne MM. Disclosure of Illness Sta-tus to Children and Adolescents with HIV Infection. Pediatrics. 1999; 103(1): 164-166.
PMTCT strategic vision 2010-2015: preventing mother-to-child transmission of HIV to reach the UNGASS and Millen-nium Development Goals. WHO. 2010.
Williamson J. Finding a way forward: Principles and strate-gies to reduce the impacts of AIDS on children and families. In: Levine C, Foster G, eds. The orphan generation: The glob-al legacy of the AIDS epidemic. Cambridge University Press, Cambridge; 2000.
Makame V, Ari C, Grantham-McGregor S. Psychologi-cal wellbeing of orphaned children. In: Salaam DE, Tanzania, eds. Acta Paediatrica. 2002; 91: 459-465. doi: 10.1111/j.1651- 2227.2002.tb01671.x
Sengendo J, Nambi J. The psychological effect of orphan-hood: A study of orphans in Rakai District. Health Transition Review. 1997; 7: 105-124.
Naar-King S, Kolmodin K, Parsons JT, Murphy D. Psycho-social factors and substance use in high-risk youth living with HIV: a multi-site study. AIDS Care. 2010; 22(4): 475-482. doi: 10.1080/09540120903220279
Elkington KS, Bauermeister JA, Zimmerman MA. Psy-chological distress, substance use, and HIV/STI risk behav-iors among youth. J Youth Adolesc. 2010; 39(5): 514-527. doi: 10.1007/s10964-010-9524-7
Rongkavilit C, Wright K, Chen X, Naar-King S, Chuenyam T, Phanuphak P. HIV stigma, disclosure and psychosocial dis-tress among Thai youth living with HIV. Int J STD AIDS. 2010; 21(2): 126-132. doi: 10.1258/ijsa.2009.008488
Wolitski RJ, Pals SL, Kidder DP, Courtenay-Quirk C, Holt-grave DR. The effects of HIV stigma on health, disclosure of HIV status, and risk behavior of homeless and unstably housed persons living with HIV. AIDS Behav. 2009; 13(6): 1222-1232. doi: 10.1007/s10461-008-9455-4
American Academy of Pediatrics. Disclosure of illness sta-tus to children and adolescents with HIV infection. Pediatrics. 1999; 103: 164-166.
Winnifred MM. The Effect of orphanhood on the psychoso-cial development of pre-primary and primary school learners. University of South Africa. 2009.
Renée VG, Lotte K. The Psychosocial Problems of Children with HIV/AIDS on Antiretroviral Treatment in South Africa. 2005: 1-22.
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