Qualitative Study for the Development of a Telemedicine System in Palliative Care

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Authors

  • Miguel Sebastian Egoavil
  • Daniel Flavio Condor
  • Miguel Alonso Pinazo-Vidal
  • Juan Manuel Quezada
  • Boris Manuel Fazio
  • Juan Carlos Bueno
  • Luis Enrique Peña
  • Jaime Farfán
  • Jose Gaspar De la Puente
  • Cesar Arce
  • Bregy Malpartida
  • Anthony Arostegui
  • Jose Enrique Pérez-Lu

DOI:

https://doi.org/10.17140/PMHCOJ-3-122

Keywords:

Telemedicine, Interviews as topic, Focus groups, Palliative care

Abstract

Introduction: Technological advances in public health have allowed the life expectancy of people to increase. However, new challenges appear in populations that age as the greatest number of chronic and oncological diseases requiring chronic and/or palliative care. In Peru, this is an area that has not developed. The use of Information and Communication Technologies (ICT) can optimize healthcare, and in the case of palliative care they could shorten the distances be-tween the specialist, the caregiver and the patient.
Objective: To know the needs of health professionals and caregivers of patients who are in palliative care, regarding the management of information, knowledge, attitudes and the use of ICT in palliative care.
Materials and Methods: As part of the TeleJampiq project, a first phase of qualitative study is developed. A focus group was conducted with six caregivers. Family members’ informa-tion was obtained through two field reports and two interviews. Finally, the exploration of the needs and suggestions of palliative care specialists was carried out by ten in-depth interviews (six physicians, one psychologist and three nurses). Through the data analysis we were able to identify three major themes in which the results were classified: Management of information on chronic diseases and terminal patients, knowledge and actions in palliative care and use of ICT for palliative care.
Results: Management of information on chronic diseases and terminal patients. It is essential to draw a distinction between terminability and palliation. Managing these concepts could make a difference from the start of treatment. Knowledge and actions in palliative care. Non-family caregivers’ knowledge of the meaning of palliative care is like that of specialists (doc-tors and nurses). Use of ICT for palliative care. The use of mobile devices among health personnel interviewed is overwhelming. Engaging in aspects of information management to other specialists such as nutritionists and psychologists would be beneficial.
Conclusions: It is necessary to use ICT in the field of chronic and palliative care, being a fundamental aspect the communication between personnel working in the system and the use of scales, care protocols, among others.

References

Frenk J. Globalization and health: The role of knowledge in an interdependent world. Natl Institutes Heal. 2009; 1-10. Web site. http://www.fic.nih.gov/News/Events/Documents/barmes-2009-transcript-julio-frenk.pdf. Accessed February 28, 2017.

Chan M. Climate change and health: Preparing for unprec-edented challenges. The 2007 David E. Barmes Global Health Lecture. 2007. Web site. http://www.who.int/dg/speech-es/2007/20071211_maryland/en/. Accessed January 11, 2017.

Bosch X. Two billion people older than 60 years by 2050 warns UN Secretary General. Lancet. 2002; 359(9314): 1321.

Sepúlveda C, Marlin A, Yoshida T, Ullrich A. Palliative Care: The World Health Organization’s global perspective. J Pain Symptom Manage. 2002; 24(2): 91-96. doi: 10.1016/S0885- 3924(02)00440-2

Duursma F, Schers HJ, Vissers KC, Hasselaar J. Study pro-tocol: Optimization of complex palliative care at home via tele-medicine. A cluster randomized controlled trial. BMC Palliat Care. 2011; 10: 13. doi: 10.1186/1472-684X-10-13

Van Den Berg N, Schumann M, Kraft K, Hoffmann W. Telemedicine and telecare for older patients-A systematic re-view. Maturitas. 2012; 73(2): 94-114. doi: 10.1016/j.maturi-tas.2012.06.010

Yang HL, Hsiao SL. Mechanisms of developing innovative IT-enabled services: A case study of Taiwanese healthcare service. Technovation. 2009; 29(5): 327-337. doi: 10.1016/j. technovation.2009.01.006

Capurro D, Ganzinger M, Pérez-Lu JE. Palliative care from a medical informatics perspective in Chile, Germany, and Peru. Stud Health Technol Inform. 2013; 192(1-2): 1013. doi: 10.3233/978-1-61499-289-9-1013

Ricur G, Carnicero J, Fernández A. Telemedicina: Generali-dades y áreas de aplicación clínica. In: Manual de Salud Elec-trónica Para Directivos de Servicios Y Sistemas de Salud [In spanish]. México D.F., México: Naciones Unidas; 2011: 169- 193.

Chaudhry B, Wang J, Wu S, et al. Systematic review : Im-pact of health information technology on quality, efficiency, and costs of medical care. Ann Intern Med. 2006; 144: 742-752. doi: 10.7326/0003-4819-144-10-200605160-00125

Van Der Meijden MJ, Tange HJ, Troost J, Hasman A. Deter-minants of success of inpatient clinical information systems: A literature review. J Am Med Inform Assoc. 2003; 10(3): 235-243. doi: 10.1197/jamia.M1094

Mohd H, Mastura S, Mohamad S. Acceptance model of elec-tronic medical record. J Adv Inf Manag Stud. 2005; 2(1): 75-92. Web site. http://repo.uum.edu.my/2246/. Accessed February 28, 2017.

Lober WB, Quiles C, Wagner S, et al. Three years experi-ence with the implementation of a networked electronic medi-cal record in Haiti. AMIA Annu Symp Proc. 2008: 434-438. Web site. https://pdfs.semanticscholar.org/04e9/baad513ab-99fe68a87a271afae4110e14c4e.pdf. Accessed February 28, 2017.

Hersh WR. Adding value to the electronic health record through secondary use of data for quality assurance, research, and surveillance. Am J Manag Care. 2007; 13(6 Part 1): 277- 278. doi: 10.1001/jama.229.4.457

About Telemedicine. American Telemedicine Association. 2016. Web site. http://www.americantelemed.org/about/about-telemedicine. Accessed February 28, 2017.

Ekeland AG, Bowes A, Flottorp S. Methodologies for as-sessing telemedicine: A systematic review of reviews. Int J Med Inform. 2012; 81(1): 1-11. doi: 10.1016/j.ijmedinf.2011.10.009

Kidd L, Cayless S, Johnston B, Wengstrom Y. Telehealth in palliative care in the UK: A review of the evidence. J Telemed Telecare. 2010; 16(7): 394-402. doi: 10.1258/jtt.2010.091108

Capurro D, Ganzinger M, Perez-Lu J, Knaup P. Effective-ness of ehealth interventions and information needs in palliative care: A systematic literature review. J Med Internet Res. 2014; 16(3): e72. doi: 10.2196/jmir.2812

Reigada C, Pais-ribeiro J. The caregiver role in palliative care: A systematic review of the literature. Heal Care Curr Rev. 2015; 3(2): 8-10. doi: 10.4172/2375-4273.1000143

Wittenberg-Lyles E, Parker Oliver D, Demiris G, Swarz J, Rendo M. YouTube as a tool for pain management with informal caregivers of cancer patients: A systematic review. J Pain Symp-tom Manage. 2014; 48(6): 1200-1210. doi: 10.1016/j.jpainsym-man.2014.02.015

Brandstätter M, Kögler M, Baumann U, et al. Experience of meaning in life in bereaved informal caregivers of palliative care patients. Support Care Cancer. 2014; 22(5): 1391-1399. doi: 10.1007/s00520-013-2099-6

McCall K, Keen J, Farrer K, et al. Perceptions of the use of a remote monitoring system in patients receiving palliative care at home. Int J Palliat Nurs. 2008; 14(9): 426-431. doi: 10.12968/ ijpn.2008.14.9.31121

Oishi A, Murtagh FEM. The challenges of uncertainty and interprofessional collaboration in palliative care for non-cancer patients in the community: A systematic review of views from patients, carers and health-care professionals. Palliat Med. 2014; 28(9): 1081-1098. doi: 10.1177/0269216314531999

Allsop MJ, Taylor S, Mulvey MR, Bennett MI, Bewick BM. Information and communication technology for manag-ing pain in palliative care: A review of the literature. BMJ Sup-port Palliat Care. 2015; 5(5): 481-489. doi: 10.1136/bmjsp-care-2013-000625

Reis A, Pedrosa A, Dourado M, Reis C. Information and communication technologies in long-term and palliative care. Procedia Technol. 2013; 9: 1303-1312. doi: 10.1016/j.protcy. 2013.12.146

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Published

2017-06-29

How to Cite

Miguel Sebastian Egoavil, Daniel Flavio Condor, Miguel Alonso Pinazo-Vidal, Juan Manuel Quezada, Boris Manuel Fazio, Juan Carlos Bueno, … Jose Enrique Pérez-Lu. (2017). Qualitative Study for the Development of a Telemedicine System in Palliative Care. Palliative Medicine and Hospice Care, 3(2), 14–21. https://doi.org/10.17140/PMHCOJ-3-122

Issue

Vol. 3 No. 2 (2017): Volume 3 Issue 2 2017

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Articles

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